Healing Trey

Life isn't about waiting for the storm to pass, it's about learning to dance in the rain.

Friday, August 26, 2011

Today

"We worry about what a child will be tomorrow, yet we sometimes forget that they are someone today."

Posted by Courtney at 7:53 PM

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Trey's Story

Courtney: In July 2007, at the age of 8 months, Trey was diagnosed with infantile spasms. We briefly went though a trial of medications (Vitamin B6 and Topamax - which did nothing), and eventually used a steroid called ACTH which thankfully eradicated his seizures. He was seizure free and medication free for 3 1/2 years until that phantom bully crept back into our lives uninvited in January 2011. We were told there was a small chance he could develop a different seizure disorder later (small b/c he was and is normally developing and they found no reason for the seizures to occur in the first place). We NEVER thought these seizures would return because he was doing so well, but alas, here we are. They are not infantile spasms, but are now partial seizures. He has developed well despite any statistics we were given about his diagnosis. He has been doing great - developing right on track and above average in so many ways. We do have a few behavioral issues we are working through but we plan on conquering those as well. We are working tirelessly to get our little boy back to good as he was before. He beat these seizures once, I know he can do it again! GO TREY!!! We LOVE you!!!

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Things We Are Doing

Family Hope Center Program
High Nutrient Diet
Nutritional Supplements
Gluten/Casein/Processed Sugar Free
Craniosacral Therapy
Homeopathy
Functional Medicine
Chiropractic
Hyperbaric Chamber
Medications
Lots of Love! :)

Medications

Keppra (2/2011 - present) - max dose at 800 mg 2x daily - no effect, maybe made seizures worse - also told later that this is not a good drug for the type of seizures Trey is having, so does this one really count? Side effects were minimal - maybe some rage/anger issues at times, but overall he did well on it. Currently on 300 mg 2x daily.

Zonegran/Zonisamide - (7.7.11 - 7.17.11) - made seizures worse.

Depakote - (7.23.11 - present)

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I Love Lucy
John
Kevin's Healing Journey
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Parents with Purpose
Ruby Jane
Ryan's Journey - HBOT
Uncommon Sense

Links of Interest

Interesting Article on IS

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